Fabry disease is a complex disorder, and we understand that you will have lots of questions about your condition, both when you are first diagnosed and also throughout your life with Fabry disease.
Your clinical referral team and the MPS Society are here to support you. Takeda UK have also developed the following resources to help you and your friends and family learn more about Fabry disease.

Find out about Fabry disease, including what it is, its symptoms, and how it is inherited.

Find out more about living with Fabry disease, including advice and support on managing school, college and work.

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Did you know?

Fabry disease affects men and women of all ethnic backgrounds in all parts of the world

This booklet can be shared with your family and friends to explain some of the details about Fabry disease outlined in the MINI-GUIDES.

This booklet outlines some suggested points to talk through when discussing your diagnosis of Fabry disease with your wider family.

Watch SIMON’S STORY

Simon and his family describe their experience of living with Fabry disease, including receiving the diagnosis, living with Fabry disease day to day, and thoughts about the future.

 

Watch KATRINA’S STORY

Katrina describes her experience with Fabry disease, from learning about her diagnosis and the impact of this on her family, to dealing with her symptoms and receiving treatment.

 

 

Many people with Fabry disease gain great support from other patients. The MPS Society is an active support group for people with Fabry disease and their families, and provides lots of information and individual support. It offers a unique opportunity for people affected by Fabry disease to get in touch with other people in similar circumstances, and provides up-to-date information on the management and treatment of Fabry disease, and about living with the condition. For further information about the MPS Society, please visit: www.mpssociety.org.uk.