Fabry disease is a complex disorder, and we understand that you will have lots of questions about your condition, both when you are first diagnosed and also throughout your life with Fabry disease.
Your clinical referral team and the MPS Society are here to support you. Takeda UK have also developed the following resources to help you and your friends and family learn more about Fabry disease.
Fabry disease affects men and women of all ethnic backgrounds in all parts of the world
Watch SIMON’S STORY
Simon and his family describe their experience of living with Fabry disease, including receiving the diagnosis, living with Fabry disease day to day, and thoughts about the future.
Watch KATRINA’S STORY
Katrina describes her experience with Fabry disease, from learning about her diagnosis and the impact of this on her family, to dealing with her symptoms and receiving treatment.
Many people with Fabry disease gain great support from other patients. The MPS Society is an active support group for people with Fabry disease and their families, and provides lots of information and individual support. It offers a unique opportunity for people affected by Fabry disease to get in touch with other people in similar circumstances, and provides up-to-date information on the management and treatment of Fabry disease, and about living with the condition. For further information about the MPS Society, please visit: www.mpssociety.org.uk.