Welcome to the REPLAGAL® patient website.
Your clinical referral centre have provided you with access to this Takeda-developed website because they have prescribed REPLAGAL® for you as a treatment for Fabry disease.
Here you will find information about Fabry disease (including symptoms and key facts), support regarding your treatment with REPLAGAL®, and sources of further advice and information.

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REPLAGAL® for the treatment of Fabry disease
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Living with Fabry disease

 

The MPS Society is an active support group for people with Fabry disease and their families, and provides lots of up-to-date information and individual support on the management and treatment of Fabry disease, and about living with the condition. Many people with Fabry disease gain great support from other patients. The Society also offers a unique opportunity for people affected by Fabry disease to get in touch with other people in similar circumstances. For further information about the MPS Society, please visit: https://www.mpssociety.org.uk/fabry-disease.

 

 

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Did you know?

Fabry disease is an X-linked condition, which means that the gene responsible for causing Fabry disease is on the X chromosome:

  • Women with Fabry disease have a 50% chance of passing the gene that causes the disease on to their sons and daughters
  • Men with Fabry disease will pass the gene that causes the disease on to their daughters, but not their sons

I am number 17 is a campaign to help the voices of those with a rare disease be heard, brought to you by Takeda together with 13 patient groups for rare diseases from across the UK. The goal is to increase the understanding of what it is like to live with a rare disease such as Fabry disease, and to show that rare isn’t always that rare. For more information visit: https://iamnumber17.geneticalliance.org.uk/.